My condition isn’t always visible on the outside,
For it lurks within
The pressure ever increasing,
Causing excruciating pain on a daily basis
Just because I have a smile on my face,
Doesn’t mean I am not suffering,
Sometimes I need to push through and pretend,
Even though it is destroying me on the inside
You can never judge a person from the outside,
For the inside is where the true inspiration resides,
A book can have the fanciest of covers,
Yet hold no visible substance
I have lived my life without always knowing,
For I stumbled through life in a daze,
My diagnosis came when I was older
Yet I still didn’t know what it truly meant for me
Only a few short years ago I found another family,
My hydrocephalus family,
They are all an inspiration to me,
For they understand and have embraced who I am
They are the such beautiful people
Inside and outside they drive me to be better,
I am blessed to have them in my life
For answers have been found
Each day is a struggle,
Some worse than others,
But I have found my home.